Wednesday, August 26, 2015

Today is Wednesday, August 26.
I just shared my blog for Jacob's house to my Facebook wall.
Krista sent me a link for the GoFundMe site but I'm not able to attach it to this.
I'll have her do it for me after work today.
I'm not sure what the amount of donations are on the site yet but it's only been up for a few days, so I have hope.
I'm thinking of embroidering the names of the people who make donations onto quilt squares, then making a quilt when we've reached our goal.
I think it'll be nice for Jacob and his sister Kaylee to always have a visual example of all the people that cared so much to help them.

Tuesday, August 25, 2015

 
 This is Jacob.
   
     He's 6 years old.

     He's my Grandson.

     He's Superman.

     He's also The Hulk, Spiderman, Batman, a pirate, a ninja, a wrestler, a boxer, a cop, a firefighter, an astronaut...

     Last Year he was Captain America...and he was also diagnosed with Duchenne's Muscular Dystrophy...

     "Duchenne's Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births... Duchennes results in progressive loss of strength...The progressive muscle weakness leads to medical problems, particularly issues relating to the heart and lungs. Young men with Duchenne typically live into their late twenties...Although there are medical treatments that may help slow it's progression, there is currently no cure for Duchenne."  
      "Typically, boys with Duchenne lose their ability to walk between the ages of ten and fourteen. By their late teens, young men lose the strength in their upper bodies, including the ability to move their arms..."   
                                                         http://www.parentprojectmd.org/site/PageServer?pagename=Understand_about_progress
 
       This year Jacob went to MDA camp, walked with his Family at the MDA Walk at Mall of America, helped aunt Carrie move into a new apartment, helped his sister Kaylee rehearse for Aunt Katie's wedding, went fishing with his mom, dad, and sister, went hunting, built many lego houses, went swimming, played football, ran around, climbed on rocks, helped around the house, helped whenever and wherever he could, he played with cars...he's done so much and he'll do so much more in the years to come; Granted, some of it will be with assistance but mostly he will do whatever he wants using his own will and determination.
   
       Next year, because his future need for a wheelchair, I hope to see Jacob and his family in a fully functional, handicapped accessible house. His parents are in the process of planning for the construction of this house. It will be a duplex where his other grandma and grandpa will live so they can help care for Jacob as he gets older and his disease inevitably progresses.
 
      Yesterday Jacob's mom started a Go fund me account in an effort to ease some of the financial burden on the family. It wasn't an easy thing for her to do, asking for help, but I'm so proud of her for doing it, as she and Jacob's dad work so hard everyday to pay the bills and put food on the table. They make ends meet but that's about it. Jacob's uncle Kevin takes care of him and Kaylee during the day while their mom and dad are working (I just added that because I think he's wonderful for loving his neice and nephew so much that he wants to be there with them and for them everyday).

      Today I'm starting this blog because it's the least I can do. I cannot help pay for it, I cannot help build it, and i cannot help plan it, but I can help spread the word, and I can keep all of the kind people who care about Jacob's situation up to date on the progress of this project, on the progress of A House for Superman.

   For more information on how to donate to Jacob's cause please go to http://www.gofundme.com/yb2cye3s